Not So Invisible Anymore?
My daughter Christine has, what is sometimes called, an invisible disease. Though she looks teriffic most of the time, she has suffered, for over a dozen years, with the debilitating and painful...
View ArticlePersonal Essay: The Let Down
On September 30, my daughter Christine, aka “Spoon Lady,” got married. The preparations took over a year in the making. Though Chris and Frank did most of the planning, it was fun to hear about each...
View ArticleCare Giver Support: Handling the Unexpected With an Elderly Loved One
The other day my mother had a medical emergency and I was totally unprepared. I had always prided myself on the fact that since my daughter Christine had Lupus, I was pretty good at handling emergency...
View ArticleRemembering Emma, in honor of Breast Cancer Month
Good friends are hard to find. Great friends come along once in a lifetime if you are lucky. I have had a group of friends since my college days and by some standards, we are an odd bunch of diverse...
View ArticleLove Can Be a Rice Ball
In my family I was always the one the children went to for hugs and kisses. I was the mush, the softie, the emotional dishrag. My husband on the other hand was the cool one who sometimes was even...
View Article10 Lessons My Daughter Has Taught Me
My daughter Christine is my hero and my inspiration. I know every mother loves her daughter and thinks the world of them, but Chris has taught me so much. Chris was a vibrant child full of life and...
View ArticleExcuse Me For Saying It, But Lupus Sucks!
May is Lupus Awareness Month! How Will You Spread Awareness? My daughter Christine has a tee shirt with the above logo emblazened on it, and I have always disliked the crudeness of that phrase. Every...
View ArticleLupus – A Mother’s View
IN Honor of Mother’s Day in the US, my mother wrote this article about being a mom of a child with Lupus. My daughter Christine has had Lupus, with the accompanying vast array of symptoms, since she...
View ArticleA Time To Give Thanks
This is the time of year that inspires us to examine our lives with a closer look and make a checklist of what we are truly thankful for. No matter what your religion or your background, Thanksgiving...
View ArticleThe After Holiday Crash
My daughter Christine has Lupus and she thinks she is invincible. She tries to overcompensate for the times she feels like hell, by being Superwoman, Supermom and Martha Stewart, all rolled into one....
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